References

Scientific References

The following references can be accessed to learn more about suicidal behaviors in persons with an ID or an ASD. This reference list is not exhaustive and does not contain all research data in this area. Most of the articles listed below are accessible through Google Scholar.

Suicidal Behaviours in persons with an ID or an ASD

Bardon C, Morin D, Halmov X, Mishara BL, Morin D, Mérineau-Coté J, et al. Understanding suicide risk : developing a specific model of suicide risk for individuals presenting with an ID or an ASD.  2017 Annual Conference of the AAIDD; Hartford, CT2017.

Bardon C, Morin D, Halmov X, Mishara BL, Morin D, Mérineau-Coté J, et al. Assessing suicide risk : developing a process to support clinical judgement for suicide risk assessment in persons presenting with an ID or an ASD.  2017 Annual Conference of the AAIDD; Hartford, CT2017.

Bardon C, Morin D, Ouimet A-M, Mongeau C. Comprendre le risque suicidaire chez les personnes présentant une déficience intellectuelle ou un trouble du spectre de l’autisme. Revue francophone de la déficience intellectuelle. 2015;26:102-16.

Bardon C, Morin D, Ouimet A-M, Mongeau C, Girard M-J. Comprendre et prévenir le risque suicidaire chez les personnes présentant une déficience intellectuelle ou un trouble du spectre de l’autisme : une consultation d’experts. Montréal, QC2014.

Bardon C, Halmov X, Mishara BL, Morin D, Morin D, Ouimet A-M, et al. Comprendre et estimer le risque suicidaire des personnes ayant un TSA: les résultats d’une recherche menée au Québec pour le développement de nouvelles pratiques. In: Rousseau M, Bourassa J, Milette N, McKinnon S, editors. De l’enfance à l’âge adulte : pratiques psychoéducatives innovantes auprès des personnes ayant un trouble du spectre de l’autisme. Longueuil, QC: Béliveau éditeur; 2017.

Benson BA, Laman DS. Suicidal tendencies of mentally retarded adults in community settings. Australia and New Zealand Journal of Developmental Disabilities. 1988;14:49-54.

Cassidy S, Bradley P, Robinson J, Allison C, McHugh M, Baron-Cohen S. Suicidal ideation and suicide plans or attempts in adults with Asperger’s syndrome attending a specialist diagnostic clinic: a clinical cohort study. The Lancet Psychiatry 2014;1(2):142-7.

Hardan A, Sahl R. Suicidal behavior in children and adolescents with developmental disorders. Research in Developmental Disabilities. 1999 7//;20(4):287-96.

Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. Premature mortality in autism spectrum disorder. The British Journal of Psychiatry. 2016 2016-03-01 00:00:00;208(3):232-8.

Kato K, Mikami K, Akama F, Yamada K, Maehara M, Kimoto K, et al. Clinical features of suicide attempts in adults with autism spectrum disorders. General Hospital Psychiatry. 2013;35(1):50-3.

Ludi E, Ballard ED, Greenbaum R, Pao M, Bridge J, Reynolds W, et al. Suicide risk in youth with intellectual disabilities: The challenges of screening. Journal of Developmental and Behavioral Pediatrics. 2012;33(5):431-40.

Lunsky Y. Suicidality in a clinical and community sample of adults with mental retardation. Research in Developmental Disabilities 2004;25(3):231-43.

Lunsky Y, Raina P, Burge P. Suicidality among adults with intellectual disability. Journal of Affective Disorders. 2012 11//;140(3):292-5.

Mayes SD, Gorman AA, Hillwig-Garcia J, Syed E. Suicide ideation and attempts in children with autism. Research in Autism Spectrum Disorders. 2013 1//;7(1):109-19.

Menolascino FJ, Lazer J, Stark JA. Diagnosis and management of depression and suicidal behavior in persons with severe mental retardation. Journal of the multihandicapped person. 1989;2(2):89-103.

Merrick J, Merrick E, Lunsky Y, Kandel I. Suicide behavior in persons with intellectual disability. ScientificWorldJourna. 2005;5:729-35.

Merrick J, Merrick E, Lunsky Y, Kandel I. Review of suicidality in persons with intellectual disability. Israel Journal of Psychiatry and Related Sciences. 2006;43(4):258-64.

Ouimet A-M, Mongeau C, Morin D. L’expérience d’intervenants spécialisés en DITED de leur utilisation de la Grille d’estimation de la dangerosité d’un passage à l’acte suicidaire (SAM et CDC). Rapport d’analyse de la séance de travail tenue le 22 juillet 2013 et organisée conjointement par le CRISE et le CRDITED de Montréal dans le cadre des travaux sur la prévention du suicide chez les personnes ayant une DI ou un TED. Montréal, QC 2013. 22 p.

Paquette-Smith M, Weiss J, Lunsky Y. History of Suicide Attempts in Adults With Asperger Syndrome. Crisis. 2014;35(4):273-7.

Patja K, Iivanainen M, Raitasuo S, Lonnqvist J. Suicide mortality in mental retardation:a 35-year follow-up study. Acta Psychiatrica Scandinavica. 2001;103(4):307-11.

Patja K. Suicide cases in a population-based cohort of persons with intellectual disability in a 35-year follow-up. Mental health aspects of developmental disabilities. 2004;7(4):117-23.

Raja M. Suicide risk in adults with Asperger’s syndrome. The Lancet Psychiatry. 2014 7//;1(2):99-101.

Raja M, Azzoni A, Frustaci A. AUTISM Spectrum Disorders and Suicidality. Clinical Practice & Epidemiology in Mental Health 2011;7:97-105.

Richa S, Fahed M, Khoury E, Mishara BL. Suicide in autism spectrum disorders. Archives of Suicide Research. 2014:null-null.

Shtayermman O. Suicide and suicidal ideation among individuals diagnosed with an autism spectrum disorder. In: Franklin. C, Harris. MB, Allen-Meares. P, editors. The school services sourcebook: A guide for school-based professionals (2nd ed). New York, NY, US: Oxford University Press; 2013. p. 261-71.

Sovner S, Hurley AD. Suicidal behavior in mentally retarded persons. Psychiatric Aspects of Mental Retardation Newsletter. 1998;1(10):37-40.

Storch EA, Sulkowski ML, Nadeau J, Lewin AB, Arnold EB, Mutch PJ, et al. The Phenomenology and Clinical Correlates of Suicidal Thoughts and Behaviors in Youth with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders. 2013;43(10):2450-9.

Sturmey P. Suicidal threats and behavior in a person with developmental disabilities: effective psychiatric monitoring based on a fundamental assessment. Behavioral Interventions. 1994;9(4):235-45.

Walters AS, Barrett RP, Knapp LG, Borden MC. Suicidal behavior in children and adolescents with mental retardation. Research in Developmental Disabilities. 1995;16(2):85-6.

 

Understanding of death and related concepts

Burke K, Obroin D, McEvoy J, editors. Teaching Death Concepts to Adults With Intellectual Disabilities Using Computer Games. Proceedings of the European Conference on Games Based Learning; 2014; Reading, USA: Academic Conferences & Publishing International.

 

Distress and mental disorders in persons presenting ID or ASD

Ali A, King M, Strydom A, Hassiotis A. Self-reported stigma and symptoms of anxiety and depression in people with intellectual disabilities: Findings from a cross sectional study in England. Journal of Affective Disorders. 2015;187:224-31.

Bramston P, Fogarty GJ. The assessment of emotional distress experienced by people with an intellectual disability: A study of different methodologies. Research in Developmental Disabilities. 2000;21(6):487-500.

Bramston P, Fogarty GJ. Measuring stress in the mildly intellectually handicapped: The factorial structure of the Subjective Stress Scale. Research in Developmental Disabilities. 1995;16(2):117-31.

Fogarty GJ, Bramston P, Cummins RA. Validation of the Lifestress Inventory for people with a mild intellectual disability. Research in Developmental Disabilities. 1997;18(6):435-56.

Hirvikoski T, Blomqvist M. High self-perceived stress and poor coping in intellectually able adults with autism spectrum disorder. Autism. 2015;19(6):752-7.

Kellett S, Beail N, Newman DW, Frankish P. Utility of the brief symptom inventory in the assessment of psychological distress. Journal of Applied Research in Intellectual Disabilities. 2003;16(2):127-34.

Mason J, Scior K. ‘Diagnostic overshadowing’amongst clinicians working with people with intellectual disabilities in the UK. Journal of Applied Research in Intellectual Disabilities. 2004;17(2):85-90.

McKenzie K, Smith M, Purcell AM. The reported expression of pain and distress by people with an intellectual disability. Journal of Clinical Nursing. 2013;22(13-14):1833-42.

Regnard C, Reynolds J, Watson B, Matthews D, Gibson L, Clarke C. Understanding distress in people with severe communication difficulties: developing and assessing the Disability Distress Assessment Tool (DisDAT). Journal of Intellectual Disability Research. 2007;51(4):277-92.

 

Research Reports

Original research report (in French only): Comprendre et estimer le risque suicidaire chez les personnes ayant une DI ou un TSA:

Rapport IRSC 2017